Month: June 2021

Update on the Status of SMA newborn screening in Spain

The Spanish patient association for spinal muscular atrophy (SMA) is the Fundación Atrofia Muscular Espinal (FundAME). FundAME is currently following several strategies to support the implementation of SMA newborn screening (NBS). The Alliance and SMA Europe want to support these initiatives and share best practices between SMA patient associations. In the meetings held with the […]

United Kingdom Petition to Parliament to Fund SMA Newborn Screening

The petition to fund newborn screening for SMA immediately was created by Dr. Laurent Servais and the deadline to collect signatures is 17 December 2021. If the petition reaches 10,000 signatures, the government will respond. Residents of the UK can sign the petition here. If you do not live in the UK, but know someone […]