Month: January 2022

SMA NBS Alliance wins Company Award for Patient Engagement

We at SMA Europe and on behalf of the entire SMA NBS Alliance are extremely grateful to receive the Black Pearl 2022 Company Award for Patient Engagement. We would like to thank EURORDIS-Rare Diseases Europe and all its nearly 1000 rare disease patient group members for this recognition. SMA Europe also recognizes and expresses its […]

SMA NBS Alliance Webinar on Newborn Screening Techniques for Spinal Muscular Atrophy

The European Alliance for Newborn Screening in SMA organized a webinar for SMA Europe members on 18 January 2022. The topic of newborn screening techniques for SMA was covered from a variety of viewpoints. Speakers included:Marie-Christine Ouillade – SMA Europe, Chair of SMA NBS Alliance Steering Committee Introduction to the SMA Newborn screening process and […]

IBIMA joins the SMA NBS Alliance

The European Alliance for SMA Newborn Screening is proud to welcome its newest partner organization the Biomedical Research Institute of Malaga (IBIMA). IBIMA is a cutting-edge centre of excellence in biomedicine and an accredited research institute in Malaga, Spain. IBIMA includes a multidisciplinary research space in which scientists from the university and health field work […]