Advocacy Tools

Click below to download the latest version
of the SMA NBS Alliance materials

European Alliance for Newborn Screening in SMA

Whitepaper – Spinal muscular atrophy: screen at birth, save lives

(version 2, 25 November 2021)

– Call to Action on Newborn Screening for SMA

– Poster on the SMA NBS Alliance

recently presented during ISNS 2021

– Flyer on the SMA NBS Alliance

 

– Affiche en français

Other tools

EURORDIS’ Key Principles for Newborn Screening

Screen4Rare EU level Call to Action on Newborn Screening for Rare Diseases

Neonatal Screening in Europe Revisited: An ISNS Perspective on the Current State and Developments Since 2010

Banner photo by Christopher Hargoues / AFM-Téléthon