Advocacy Tools

Click below to download the latest version
of the SMA NBS Alliance materials

European Alliance for Newborn Screening in SMA

Whitepaper – Spinal muscular atrophy: screen at birth, save lives

(version 2, 25 November 2021)

– Call to Action on Newborn Screening for SMA

– Poster on the SMA NBS Alliance

recently presented during ISNS 2021

– Flyer on the SMA NBS Alliance

 

– Affiche en français

Other tools

EURORDIS’ Key Principles for Newborn Screening

Achieving Equity and Innovation in Newborn Screening across Europe

Screen4Rare EU level Call to Action on Newborn Screening for Rare Diseases

Neonatal Screening in Europe Revisited: An ISNS Perspective on the Current State and Developments Since 2010

Banner photo by Christopher Hargoues / AFM-Téléthon