Advocacy Tools

Click below to download the latest version
of the SMA NBS Alliance materials

European Alliance for Newborn Screening in SMA

Whitepaper – Spinal muscular atrophy: screen at birth, save lives

(version 2, 25 November 2021)

Atrofia muscular espinhal: Rastrear ao nascer, pode salvar vidas (em português brasileiro)

Atrofia muscular espinal: el cribado al nacer salva vidas (en español)

Atrofie musculară spinală: Screeningul la naștere salvează vieți (în română)

Call to Action on Newborn Screening for SMA

Poster on the SMA NBS Alliance

Flyer on the SMA NBS Alliance

 

Affiche en français

Other important tools and resources

EURORDIS’ Key Principles for Newborn Screening

Supporting Patient Advocacy for Newborn Screening Toolkit

A landscape assessment of newborn screening (NBS) in Europe by Charles River Associates (2021)

Achieving Equity and Innovation in Newborn Screening across Europe

Screen4Rare EU level Call to Action on Newborn Screening for Rare Diseases

Neonatal Screening in Europe Revisited: An ISNS Perspective on the Current State and Developments Since 2010

Banner photo by Christopher Hargoues / AFM-Téléthon
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