Advocacy Tools

Click below to download the latest version
of the SMA NBS Alliance materials

European Alliance for Newborn Screening in SMA

Whitepaper- Spinal muscular atrophy: screen at birth, save lives (version 1, 26 March 2021)

Call to Action on Newborn Screening for SMA

SMA: Screen at birth, save lives

Flyer on the SMA NBS Alliance

Poster

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Other tools

EURORDIS’ Key Principles for Newborn Screening

Screen4Rare EU level Call to Action on Newborn Screening for Rare Diseases

Neonatal Screening in Europe Revisited: An ISNS Perspective on the Current State and Developments Since 2010

Banner photo by Christopher Hargoues / AFM-Téléthon