SMA UK welcomed the announcement that newborn screening for spinal muscular atrophy (SMA) in England will begin earlier than expected, with a staggered rollout starting in October 2026. This is significantly earlier than the previously expected timeline of January 2027.

The decision follows years of advocacy by SMA UK, the SMA community, clinicians, and supporters, including awareness raised by Jesy Nelson and affected families. Early diagnosis through newborn screening enables babies to access treatment before symptoms develop, significantly improving long-term outcomes.