Latest news

Nov 28, 2023

SMA Newborn Screening now available in Ireland

Newborn Screening for SMA is now available in Ireland. The Irish SMA HTA was published this week and is available in our ressources section.

Oct 31, 2023

Iceland: Spinraza approved for treatment of adults living with SMA

The drug Spinraza, used to treat the neurodegenerative disease SMA, has been approved for the treatment of adults in October 2023. So far, it has only been approved for use by children. For more information please click here.

Jun 28, 2023

International Neonatal Screening Day 2023

Today we celebrate International Neonatal Screening Day! 😊