The role of patient organisations in implementing newborn screening for rare diseases
Share4Rare has reviewed this article highlighting the work of six patient organisations including SMA Europe.
The important role of newborn screening is emphasized when it comes to enhancing the quality of life of people living with rare diseases and their families. Patient organisations like SMA Europe are vital to make these tests available in more and more countries in collaboration with health care professionals, governments and the society.
For more information, please click here:
https://www.share4rare.org/news/role-patient-organisations-newborn-screening-rare-diseases