European Alliance for
Newborn Screening in Spinal Muscular Atrophy

Opening a new horizon
for children born with spinal muscular atrophy

SMA: Test at birth, save a life
Identifying children living with SMA through NBS allows for treatment to be started on time, preventing motor neuron death and a life with severe disabilities.

The European Alliance for Newborn Screening in Spinal Muscular Atrophy demands that by 2025, newborn screening programmes in all European countries include a test for spinal muscular atrophy for all newborn children.

Learn more about newborn screening for SMA in Europe

Find out more about the status of SMA screening in different countries

Tools

Download the latest versions of the SMA NBS Alliance materials

Get to know more about us

Petition for newborn screening

Italy has recently introduced the most extensive newborn screening programme in Europe, aligned with EURORDIS’ 11 Key Principles to a harmonised approach to newborn screening published earlier this year. Join the call to the Italian Health Minister to put forward their best practice in newborn screening on the EU agenda and improve the equity of […]

The European Alliance for Newborn Screening in Spinal Muscular Atrophy demands that by 2025, newborn screening programmes in all European countries include a test for spinal muscular atrophy for all newborn children.