Latest news

Nov 7, 2023

Newborn screening for SMA in Luxembourg

We are very happy to share that the Ministry of Health of Luxembourg has confirmed that starting on 1/1/2024, all newborns born in the country will be screened for SMA.


Currently, newborns there are screened only for five disorders. Spinal Muscular Atrophy will be the sixth one.

Oct 31, 2023

Iceland: Spinraza approved for treatment of adults living with SMA

The drug Spinraza, used to treat the neurodegenerative disease SMA, has been approved for the treatment of adults in October 2023. So far, it has only been approved for use by children. For more information please click here.

Jun 28, 2023

International Neonatal Screening Day 2023

Today we celebrate International Neonatal Screening Day! 😊

PolandJun 13, 2023

The challenges of ensuring Europe-wide newborn screening for spinal muscular atrophy

Check out the latest publication on #newbornscreening issued by RARE Revolution Magazine. Our Steering Committee member Kacper Rucinski, co-founder of SMA Foundation Poland, speaks about the challenges of ensuring Europe-wide newborn screening for SMA.