Latest news

United KingdomAug 18, 2022

Launch of the UK SMA NBS Alliance website

UK SMA Newborn Screening Alliance has launched its website and social media channels to update the Community with progress towards newborn screening. Find out more about the Alliance – check out their website and follow them on social media for all the latest updates.

A call to introduce newborn screening for spinal muscular atrophy (SMA) in Scotland

Read the new publication from a group of Scottish experts on the need for SMA newborn screening.

United KingdomJun 22, 2021

United Kingdom Petition to Parliament to Fund SMA Newborn Screening

The petition to fund newborn screening for SMA immediately was created by Dr. Laurent Servais and the deadline to collect signatures is 17 December 2021. If the petition reaches 10,000 signatures, the government will respond. Residents of the UK can sign the petition here. If you do not live in the UK, but know someone who is living there, ask them for their support.