The European Alliance for SMA Newborn Screening is proud to welcome its newest partner organization the Biomedical Research Institute of Malaga (IBIMA).
The Spanish patient association for spinal muscular atrophy (SMA) is the Fundación Atrofia Muscular Espinal (FundAME). FundAME is currently following several strategies to support the implementation of SMA newborn screening (NBS). The Alliance and SMA Europe want to support these initiatives and share best practices between SMA patient associations.
After a delay in launching due to the COVID-19 pandemic, the Hospital Universitari i Politècnic La Fe de Valencia will launch a pilot neonatal screening program to detect spinal muscular atrophy (SMA) in all babies born in the Valencian Community, about 40,000 each year, both in public and private hospitals.