Latest news

Jan 21, 2022

SMA NBS Alliance Webinar on Newborn Screening Techniques for Spinal Muscular Atrophy

The European Alliance for Newborn Screening in SMA organized a webinar for SMA Europe members on 18 January 2022. The topic of newborn screening techniques for SMA was covered from a variety of viewpoints.

SpainJan 7, 2022

IBIMA joins the SMA NBS Alliance

The European Alliance for SMA Newborn Screening is proud to welcome its newest partner organization the Biomedical Research Institute of Malaga (IBIMA).

PolandNov 30, 2021

Newborn screening for SMA in Poland

SMA NBS in Poland was approved in March 2021 and is now undergoing staggered implementation, province by province, starting in April 2021. The last province is planned to enter the programme in November 2022.

EuropeNov 25, 2021

SMA Newborn Screening: Screen at birth, save lives

There is no more time to waste for babies born with SMA! The European Alliance for SMA Newborn Screening demands Newborn screening programs for SMA in all countries no later than 2025! Learn from a diverse set of people on the importance of SMA newborn screening, let’s work together to make it a reality. We have the tools to detect and treat early, we need to use them to save individuals and families a lifelong disability.