The European Alliance for SMA Newborn Screening is proud to welcome its newest partner organization the Biomedical Research Institute of Malaga (IBIMA).
SMA NBS in Poland was approved in March 2021 and is now undergoing staggered implementation, province by province, starting in April 2021. The last province is planned to enter the programme in November 2022.
There is no more time to waste for babies born with SMA! The European Alliance for SMA Newborn Screening demands Newborn screening programs for SMA in all countries no later than 2025! Learn from a diverse set of people on the importance of SMA newborn screening, let’s work together to make it a reality. We have the tools to detect and treat early, we need to use them to save individuals and families a lifelong disability.
World Children’s Day was first established by the United Nations in 1954 as Universal Children’s Day and is celebrated on 20 November each year to promote international togetherness, awareness among children worldwide, and improving children’s welfare.