Latest news

SerbiaLatviaApr 27, 2022

Newborn screening developments in Serbia and Latvia 2022

The European Alliance for SMA Newborn Screening is proud to share some developments in Serbia and Latvia for SMA newborn screening.

A call to introduce newborn screening for spinal muscular atrophy (SMA) in Scotland

Read the new publication from a group of Scottish experts on the need for SMA newborn screening.

EuropeJan 24, 2022

SMA NBS Alliance wins Company Award for Patient Engagement

We at SMA Europe and on behalf of the entire SMA NBS Alliance are extremely grateful to receive the Black Pearl 2022 Company Award for Patient Engagement. We would like to thank EURORDIS-Rare Diseases Europe and all its nearly 1000 rare disease patient group members for this recognition.

Jan 21, 2022

SMA NBS Alliance Webinar on Newborn Screening Techniques for Spinal Muscular Atrophy

The European Alliance for Newborn Screening in SMA organized a webinar for SMA Europe members on 18 January 2022. The topic of newborn screening techniques for SMA was covered from a variety of viewpoints.