Latest news

BelgiumOct 13, 2021

New publication: Three years pilot of spinal muscular atrophy newborn screening turned into official program in Southern Belgium

The SMA NBS Alliance is proud to present François Boemer‘s latest article presenting the last 3 years of work: the implementation of neonatal screening for spinal muscular atrophy in the Wallonia-Brussels Federation! Or how a pilot project becomes an official programme. Congratulations and a big thank you to all the researchers and clinicians in Belgium who helped make newborn screening for SMA a reality in Southern Belgium!

EuropeItalyOct 13, 2021

Petition for newborn screening

Italy has recently introduced the most extensive newborn screening programme in Europe, aligned with EURORDIS’ 11 Key Principles to a harmonised approach to newborn screening published earlier this year.

Update on including SMA in newborn screening programmes in Europe

The European Alliance for Newborn Screening in SMA, led by SMA Europe, is proud to announce that as of 1 September 2021, newborn screening has begun nationwide in Norway for all babies born from that day forward. The link to the official news in the Norwegian language can be found here: https://lovdata.no/dokument/LTI/forskrift/2021-06-11-1874

JapanBrazilSep 27, 2021

SMA Newborn Screening in Japan and Brazil

Read the open access, full-text article that was just published in the journal of the International Society for Neonatal Screening.